We’re delighted to announce that Tayen Gilbert from Bridgwater, who suffers from a genetic condition, will be helping to declare our shop that’s dedicated to all things Christmassy open this month (November, 2018).
Seven-year-old Tayen, who suffers from Neurofibromatosis, will be cutting the official ribbon and launching our Christmas shop on Saturday, November 17 at 10am.
Kali Gilbert, Tayen’s mum, explained: “We’re thrilled that Tayen has been selected to officially open Langford Lake’s Christmas shop and Christmas tree farm. She’s very excited. As a family we love Christmas and this will be a treat for all of us.
“I decided to nominate Tayen as she’s a little star. Tayen has a complex medical history and her genetic condition causes tumours to grow along nerves anywhere in the body. She was diagnosed at 22-months-old with bilateral optic pathway gliomas (tumours) that have spread through her brain to the back. She started chemotherapy straight away but unfortunately lost all vision just six weeks into treatment.
“Following this Tayen needed bilateral shunts to drain fluid on her brain. She also has complex epilepsy and is currently now on her third round of chemotherapy treatment. None of this stops her though. Tayen is a powerhouse of fun and energy and captures the hearts of everyone she meets.”
The Gilbert family has fundraised for various charities over the years. They also visit Children’s Hospice South West (CHSW) at Charlton Farm, which is our Charity of the Year.
We are hoping to collect as much money as possible for CHSW from the sale of mince pies and teas and coffees, aided by volunteers for the charity. The refreshments will be on offer from our launch event through to our last day of trading before Christmas on December 23. Last year we managed to raise £2,955 for the organisation.
Kali added: “CHSW has been a great lifeline of support and respite for my whole family. It is a fantastic charity and we’re delighted to hear tha tLangford Lakes will be fundraising for it again this year.”
CHSW is currently the only provider of specialist hospice care for children in the region. It offers much needed support for youngsters with a life-limiting or life-threatening condition and their families at its three hospices: Charlton Farm in North Somerset, Little Bridge House in North Devon and Little Harbour in Cornwall.
We’re so pleased that Tayen will be helping us open our Christmas tree farm and shop for the festive season.
She will be our VIP for the day and will also receive one of our British grown Christmas trees. We hope Tayen and her family have a fantastic morning with us kicking off the countdown to Christmas.
We would also like to invite everyone to this special festive season launch event on Saturday, November 17. The fun starts at 10am with an official ribbon-cutting. Bring the family and enjoy the refreshments, while also helping us raise invaluable funds for CHSW.